Today was the day we got ourselves ready for our mid way ultrasound. We where excited to find out if the baby was a boy or a girl. From this point we thought we had a healthy growing baby. I remember being nervous but thinking everything was fine last time so im sure we have no need to worry. Then i got drinking the water lol I always found this part the worst . They make you filly our bladder with tons till you feel like you make explode and your bladder . Then they do an ultrasound on you while you pray you dont pee your pants.
The ultrasound seemed normal i lied their while she took her measurements. Showed us the baby kicking and being cute. Baby was acting just like dad when baby decided to relax with one hand on the babies head and the other playing with his or her eye. Then she said i think the baby is a BOY. She left the room to go print us pictures we looked at each other all excited . Another boy to add to the family how fun. Then the man entered...
I need to talk to you both he said in kind of a sound that makes you think this isnt going to be good. He says how our baby has a serious medical condition certain areas didnt develop right and is causing problems. Then he said some babies live some die . Im calling you doctor now go see him as soon as possible. Then he left didnt explain much but he may live or die. I felt like i was kicked in the stomach. The life left my body for a bit i told Scott i just wanted to go home for a bit before the appointment instead of going shopping. We got home and i cried like i have never cried. I cant lose a child i already feel him inside of me. How could this happen.
On our way to the hospital to see our doctor i stopped and seen a sign that said "trust god". I looked at Scott and said that is what we need to do. We got up to the forth floor and got to the waiting room. The nurse calls me to weigh me and take my blood pressure. I said it may be high shes like i know and that is okay. I looked around and all these nurses had the look like they all seen my records and know exactly what is going on. She then tells me my blood pressure is okay and takes me in a room with a bunch of chairs. I sit down the first person who comes in Dr. O my normal gyno. He starts by telling us a bit about the condition but says its better if the specialist team explains it better. He says that hes passing off care to them and we are in good hands. Tells me this isnt my faults their is nothing we did to cause this. He leaves the room and calls in the specialist.
Scott and I prepare ourselves for what was about to come. I grabbed a bunch of kleenex into my shaking hands then i looked up at the specialists and they said they would explain everything now.
They tell me my baby boy has a hernia that caused his left side diaphram not to form. When this happens organs start to move into the lung cavity and restrict the lungs from growing. Then they went on by saying my son stomach and digestive track is already on top his left lung which caused his heart to shift to the right side. This puts strain on both side of the lungs and on the heart. They tell me how this can be a death sentence if the lungs dont develop at all but they see lung tissue so that gave us a bit of hope. They tell us how this could also mean heart defects and other chromosone issues we may not find out till later. They tell me they will watch him every 1-2 weeks and make sure he is okay and if he takes a sudden turn for bad they will send me across the country to the bets hospital to operate either while hes in me or out depending whats going on. I feel like my heart has bin ripped out of my chest by this point and i start to cry very hard. The specialist grabs kleenex and says we will save him dear we just have a long road ahead. Their is always chance of losing him but things look good.
The plan gets set in about if he makes it to full term here he will go straight to the NICU and then around day 2-7 he will have his first big surgery. They explain how they may have him on a bipass machine or just on oxygen depending on how hes doing. Then after surgery he will have many machines on him so to prepare ourselves. We have no idea how many surgeries he will need. The lady looking at us says expect him to be born looking different his belly will be sunkin in because lack of organs and his chest will be pushed out from all the organs in his chest. All thats going through my head is he cant die and our dreams for a normal life are gone for a long time. Then i think of my poor baby struggling to stay alive. I just want to be able to bring him home one day. Then Dr. M the specialist says go home paint your baby room and buy him clothing we will do our best that he uses that room one day.
This day took place on November 14th 2012 its now couple days later im trying to hard to be strong but i have some hard moments. We thank everyone for the support we are receiving . We will need tons and please follow this blog to find out more about baby Jacob and yes he has a name . This is Jacobs fight !
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