Well i got in for my ultrasound with the specialist yesterday. It was very long and very different from any i had before. They checked each part of him so carefully! After about an hour she said to me well he has CDH but i have some good news lets go back to my office and chat. Dr M is a very kind lady im so glad we got referred to her.
We sit down and she said to us that they wanted to see if he had atleast 43% of a right lung well guess what guys they seen 60%. The left lung is to hidden to tell if its developed but she said since the right is growing well they can work with that. They dont know if his lungs will work well but they can help him with that and hopefully one day not need help. First plus of the day. She said his heart has 4 chambers and looked like it was working well. She said she wants to make sure she didnt miss anything with the heart so we will see a heart specialist in the new year . But that sounds promising even if it is on the wrong side! His stomach is completely on top of his Left lung along with part of his intestines so that was confirmed! This ultrasound was done so slowly i even seen his stomach was clearly in his chest . We got another piece of good news since the whole seemed packed with stomach they dont see the chance of more organs moving. His liver was one they prayed stayed put and it is where it suppose to be. I guess they dont like moving livers around so the fact his stay put is another big deal! Because all his organs other then the lung is growing so well they dont think he has other chromosome issues . his chances of another condition like that has dropped to 1% at this time. We do have a choice of a test that can make sure while im pregnant but the risks are to high so scott and I made a choice to wait for testing till hes born since his chances are low. We would have to do it later in my pregnancy if something goes wrong though. But at this point they dont see a reason too. I will meet in Jan to discuss this more with the genetics team but we already made the choice on that after talking to the specialist. At this time they have ruled out operating on me to fix him while hes in me which is very invasive so im so thrilled on that. They also dont see us having to leave Saskatoon for anything at this point unless some random thing happens another weight has bin lifted. His situation is still serious but survival looks so good at this point he will have surgeries and a hard go for a bit but we keep hearing so much on his side it gives us more hope every visit. Jacob is our little fighter. The poor guy has hiccups 24/7 from the hole in his diaphragm. She said its possible they wotn stop till he has surgery so when im 9 month prego it could get interesting. He moves like crazy and is very active which thrilled our doctor They wotn do an ultrasound till christmas woo hoo they thought he looked good and wanna give him a break before all the tests in January and i will also have an MRI in the new year pray for all his test as they go please :). He is already inspiring us on how tough he is and i think hes going to show us what hes made of later. Thanks for all the love and prayers again Love Chantel and Scott
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